[tri-med] Re: Parent advocates for trisomy kids at Riley hospital

In a message dated 10/23/02 8:38:43 AM Eastern Standard Time, 
JMSK8RPRO@xxxxxxx writes:


> The subject of our meeting is communication: How can the hospital 
> effecitvely 
> communicate with parents of trisomy children, from birth or whenever the 
> hospital becomes involved in the child's care.

One major problem with communication is not giving parents any hope.  Either 
pre-natally or post-natally, doctors need to give parents realistic news, but 
also let them know that there are children surviving and living well in all 
different capacities, some who are even "typically normal".  Big sticking 
point for me.


Kristin - wife to Bryan, mom to 2 year old Hannah - t13 mosaic w/ 
Robertsonian translocation, and Brennan Joseph - 6 months old, in Atlanta, 
Georgia, USA
Come and see us at:  http://hannahclare.homestead.com/


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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