[tri-med] Re: PEG

We don't have any other thing we would need to tape to him (thankfully), but I 
wouldn't be suprised if J has some kind of latex sensitivity/allergy.  He's 
allergic to wheat and soy and anaphalactic for milk and peanuts.  Finding foods 
for him has been very challenging, although the allergy clinic is trying to 
re-introduce wheat and soy into his diet without much success.
   
  Wendi, mom to Jackson trisomy 4p, inverted duplication, 3 years and Jameson, 
6 weeks.
   
  
Karen Schuler <trisomy@xxxxxxxxxxx> wrote:
  ----- Original Message ----- 
From: "Wendi"
> We do something similar to that. I put the tape on the tubing so it goes 
> around and then sticks to itself and then diaper pin the tape to his pj's. 
> J has such sensitive skin, the tape would leave a big red mark.

I have always used idiot loops, and have tried to describe them many times 
on the list. They really, really are invaluable for any cord where there is 
pressure. I still use idiot loops on Alex's pulse oximeter and cardiac 
leads.

Just beware that red marks from tape can be the first signs of a latex 
allergy. It's all Alex had at first but it progressed rapidly and he is now 
anaphylactic. Latex allergy, unfortunately, is way more prevelant in kids 
with special needs. Regardless to if you need to tape to sensitive skin then 
consider using coloplast or duoderm under the tape. It's the same stuff that 
they use when they need to tape oxygen prongs etc to a baby's face. The 
coloplast itself is very gentle to the skin and you simply place the tape 
over the top.

Life consists not in holding good cards but in playing those you hold well.
-- Josh Billings

Keep Looking For Rainbows!!
_--_|\
/Karen \
\ _.--._ /
v Karen, Mum to Alex (12 years, T-18 Mosaic)
http://members.optushome.com.au/karens

Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line




                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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