[tri-med] Re: PEG

We do something similar to that.  I put the tape on the tubing so it goes 
around and then sticks to itself and then diaper pin the tape to his pj's.  J 
has such sensitive skin, the tape would leave a big red mark.
   
  Wendi, mom to Jackson, trisomy 4p, inverted duplication, 3 years and Jameson, 
6 weeks.
Janet King <jlvking@xxxxxxxxxxxxxxxxxxx> wrote:
  We have fed the bed too. But a couple years ago we had a nurse show us
something that helps avoid it. If you tape down the tubing to the =
stomach in
an "Idiot's loop" it helps to keep tugging pressure off the connection.
What they showed us (we have the pump at the foot of the bed) was to lay =
the
tubing in a U shape agains the belly and tape it across the U, just =
above
the connection to the belly. That way there are two points that defuse =
the
pressure of the tugging and the likelyhood of the tube coming out and
feeding the bed is less. We just use a strip of 1" silk tape across it.
Holds ok and doesn't bother her skin. On occasion we still feed the bed =
but
it's usually when the connection from the feeding bag to the tube comes
loose and that doesn't happen a lot, mostly in the hospital when they =
don't
put it in tight enough.

-----Original Message-----
From: tri-med-bounce@xxxxxxxxxxxxx [mailto:tri-med-bounce@xxxxxxxxxxxxx] =
On
Behalf Of Irene Smith
Sent: Monday, February 18, 2008 9:29 AM
To: tri-med@xxxxxxxxxxxxx
Subject: [tri-med] Re: PEG


Unfortunately, for us, one of the funner aspects of tube feeding. We =
have
fed the bed on many occasions. What we try to do is really jam the
connector into the extension tube. We push it in and turn it at the =
same
time which seems to lock it more. I don't think there is an alarm, but =
I am
not sure. Other than that, how are the tube feedings going?

Irene


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www.trisomyonline.org
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                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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