[tri-med] Re: Our baby boy,,

----- Original Message ----- 
From: "Jeff Kacmarynski" <jeffkacmarynski@xxxxxxxxx>
 My wife and I have found out recently that our baby boy has Trisomy 13. We 
are around 22 weeks and I think we have know about for 3 weeks. I am happy 
to see that there is a place to discuss and peole to relate to with this 
situation.

Hi and welcome Jeff!

Sorry that you had a reason to search us out but glad you've found us.

Families.......that can be such fun......NOT.
There isn't much you can do to change their minds but share info and your 
love with them. Once your son is here they will either be on board loving 
him or not. Their loss if it's not.

It's so hard in the early 'shock and awe' portion of the trisomy experience. 
It's a lot of info and emotion to handle when you were expecting that 
perfect Hallmark Moment.
Take a deep breath, give each other a hug and get making a list of questions 
and things to do.

While these trisomy lists are made up of many different flavors of trisomy, 
you'll find that MANY if not all have shared issues (medical, emotional, 
physical, mental). So stay open to those who have different trisomy numbers 
as you'll have much more valuable info, insights, suggestions and help open 
to you.

Probably some of our prenatal diagnosis folks will share their 'birth plans' 
with you. Personally, we didn't know prenatally with Alex 19 yrs ago, we 
played catch-up after he was born. But those who had birth plans and 
searched out info and supportive medical personnel seemed to have the best 
time of it from what I've read. Less stress, better care, more time for love 
and better memories.

Hang in there and keep asking questions. There is a gold mine of info and 
support here for you.

Michelle mom to Alex (19, partial trisomy 14 mosaic) and Molly (15)
MichiganUSA 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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