[tri-med] Re: Our baby


-----Original Message-----
From: tri-med-bounce@xxxxxxxxxxxxx [mailto:tri-med-bounce@xxxxxxxxxxxxx] On
Behalf Of Kelly Rosberg
Sent: Friday, September 01, 2006 9:24 AM

Hi Kelly and Welcome to the world Amos :o)

I'm Penny...wife to Joe (18yrs) and mom to Nick (almost 16 yrs) and Devon
(11 yrs) :o) Devon has T 13.
Congratulations on the birth of your son Kelly :o) 
So has Amos's health improved a lot after having his heart fixed??? I mean
are you seeing marked differences??? I'm curious because I have a friend
who's baby boy with T13 needs heart surgery and I like to give them any info
I can about waiting to repair versus waiting until the child gets worse and
it becomes an emergency. Devon has had 2 inguenal hernias repaired...one at
3 yrs when his testicle was brought down and one at 5 yrs. It was a breeze
for him with regard to recovery and discomfort level...I hope it's the same
for Amos :o)
I look forward to hearing more about your little man :o)
Tummy zerberts from Devon :o)

Love,
Penny...loving & devoted wife to Joe, the best husband in the world...mom to
Nick (15 yrs old...lover of Fishing, Dragons, Turtles, Blue Collar Comedy
Tour, Roller Coasters, Chocolate Ice Cream w/ Ovaltine sprinkles, Devon (11
yrs...lover of Barney, Blue, Nappy ol' Bear w/dreadlocks, Pooh, Elmo, & food
in general. Full trisomy 13 w/balanced translocation 5 and 13), and Trooper
the Wonder Dog...our 9? year old yellow lab adopted from FL Lab Rescue
12/13/02 :o) Please visit the webpage my wonderful friend Karen made for me
on our trisomy listserv at:
http://www.trisomyonline.org/victor.html      
AND...Devon's moment of glory in Exceptional Parent Magazine...
http://www.eparent.com/familiarfaces/ffaces_4_01.htm
AND...see our Trooper on FL Lab Rescue's website at:
http://www.labradorrescue.net/success/index.html (Look for the name Trooper)
AND :o) http://livingwithtrisomy13.org/album9.htm
AND http://web.coehs.siu.edu/Grants/TRIS/
"Normal people worry me"


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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