[tri-med] Re: Our baby

kammie is now 9 years old.  at our level ii she had the cyst, clinched fist 
and iugr.
we also opted for the amnio so we could find out for sure.  we continued the 
pregnancy believing what the dr told us that we would not have a baby to 
bring home from the hospital.  she was born full term and came home on day 3 
with comfort care and hospice.  i would be happy to answer any other 
questions you might have.  you can see photos of kam at my websites.
jude, mom to derek-20 (still searching for a focus), kelsey-18 (going to unm 
to be a pt)
and kameron-9-full t18 (hanging out so i will never be an empty nester)
golden, colorado usa
http://www.judewolpert.com
http://home.comcast.net/~jfwolpert2
http://judewolpert.com/v-web/b2/
----- Original Message ----- 
From: "Samantha Stanley" <sandala27@xxxxxxxxx>

> Hi -
>  I wanted to introduce myself, and our story, so far.
>  My husband and I found out on Mon, and our Level II, that our baby has 
> many abnormalities...including the following:
>  ~VSD
>  ~Hernia in diaphragm
>  ~two vessel umbilical cord
>  ~clenched hands
>  ~club foot
>  ~several cysts in the brain
>  We were told then that they think it is Trisomy 18.  We instantly spoke 
> to my OB/GYN, and he suggested we see a high risk dr, and possibly get an 
> amnio.  We did this yesterday.  The high risk dr confirmed all of the 
> findings, and even gave us worse news.  The hernia has caused all of the 
> organs to be pushed into the chest, causing the heart to be pushed to the 
> other side.  It is being squished.  She also said that there is fluid 
> behind the lungs causing more pressure on the heart, and that inevitably, 
> this baby will suffer from heart failure.  We opted for the amnio, and 
> should get the FISH results in a few days.  We even asked to know if the 
> baby is a boy or a girl, and they said it was unclear...so we are hoping 
> to find out from the amnio results.
>  I (and my husband) are just wondering if there is anyone out there whose 
> baby had the same symptoms, and what happened.  I have been reading SO 
> much...and have yet to find someone who's baby had ALL of the things our 
> baby does.
>  We just don't know where to go from here...and are looking for some 
> support.  Our hearts go our to all of you who have suffered a loss, and 
> also to those who are in similar situations to us.
>  Thank you in advance for any support, advice you may give us.
>  :) Samantha
>
> ---------------------------------
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>
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
> 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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