[tri-med] Re: Our baby

Hi, my son was born with Trisomy 18, I did not know before hand. He was 3lbs 
12 oz and had a large VSD and hernias and undesended testacles and clenched 
hands and cub feet.
He is still here today, and 4 months and 6lbs and 8 oz. He had the VSD 
repaired at 1 month, and survived and we are hoping in the future to fix the 
hernias and testacles.
Please fight for your child, the doctor have told me over and over he will 
not make it till tomorrow, but he is still here.   I want every day I can 
with my son. And when he looks right at me, I cant help but fight for him 
more.
Kelly and Amos (tri 18)
----- Original Message ----- 
From: "Samantha Stanley" <sandala27@xxxxxxxxx>
To: <Tri-Med@xxxxxxxxxxxxx>
Sent: Thursday, August 31, 2006 7:44 AM
Subject: [tri-med] Our baby


> Hi -
>  I wanted to introduce myself, and our story, so far.
>  My husband and I found out on Mon, and our Level II, that our baby has 
> many abnormalities...including the following:
>  ~VSD
>  ~Hernia in diaphragm
>  ~two vessel umbilical cord
>  ~clenched hands
>  ~club foot
>  ~several cysts in the brain
>  We were told then that they think it is Trisomy 18.  We instantly spoke 
> to my OB/GYN, and he suggested we see a high risk dr, and possibly get an 
> amnio.  We did this yesterday.  The high risk dr confirmed all of the 
> findings, and even gave us worse news.  The hernia has caused all of the 
> organs to be pushed into the chest, causing the heart to be pushed to the 
> other side.  It is being squished.  She also said that there is fluid 
> behind the lungs causing more pressure on the heart, and that inevitably, 
> this baby will suffer from heart failure.  We opted for the amnio, and 
> should get the FISH results in a few days.  We even asked to know if the 
> baby is a boy or a girl, and they said it was unclear...so we are hoping 
> to find out from the amnio results.
>  I (and my husband) are just wondering if there is anyone out there whose 
> baby had the same symptoms, and what happened.  I have been reading SO 
> much...and have yet to find someone who's baby had ALL of the things our 
> baby does.
>  We just don't know where to go from here...and are looking for some 
> support.  Our hearts go our to all of you who have suffered a loss, and 
> also to those who are in similar situations to us.
>  Thank you in advance for any support, advice you may give us.
>  :) Samantha
>
> ---------------------------------
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>
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
>
>
> 


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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