[tri-med] Re: Our baby

Samantha,
Welcome.....
My son has t13 mosaic. Surgeries...he has had 4 so far and he is 20 mo. Old.
His earliest was when he was in the NICU, hernia repair and then he also
went back into the OR a few days later because he developed pyloric
stenosis-which was unrelated to the trisomy. (we think)
Movement-Mitchell moved ALL the time. He was a very very active little baby.
It was so fun, many times you could actually see my stomach move.
Good luck-no question is silly....there are so many questions and emotions
to go with them. 
Katie 
Mom to Mitchell t13 mosaic
Www.caringbridge.org/mn/mitchelljohncragg


On 8/31/06 9:20 PM, "John and Ceci DeGenova" <jcdegenova@xxxxxxxxxxxxx>
wrote:

> Samantha, that was the song and dance our first OB tried on us when he
> informed us of Anna's diagnosis.  However, we moved during the pregnancy,
> found a wonderful neonatologist through the local Right to Life office and
> our wants and desires regarding Anna were met by the medical community where
> we lived.  Anna only lived 3 months, and did not have any surgeries, but I
> was never told "Well, we won't do anything for her because she's not worth
> it."
> 
> I highly recommend contacting your local Right to Life office for names of
> doctors who share your desire to give your baby the best chance they may
> have.
> 
> Anna was very small, weighed only 4lbs 6 oz when she was born 10 days past
> my due date. However, I did feel her move.  I had one scare one morning when
> I hadn't felt her move in a long time, about two weeks before my due date,
> but everything was fine.
> 
> Keep those questions coming.  You'll find that you are not alone.
> 
> Take care.
> Ceci, mom to angel Anna, T-18, 9/22/98 - 12/13/98, Maria, age 23 and on her
> own, Joe, 12 years old and wife to John.
> 
> ----Original Message
> 
> Date: Thu, 31 Aug 2006 11:14:38 -0700 (PDT)
> From: Samantha Stanley <sandala27@xxxxxxxxx>
> Subject: [tri-med] Re: Our baby
> 
> Thank you all for your words.  That was silly of me to ask if anyone had the
> same exact situation...I should know better that no two situations are
> alike!  haha  I guess I am just so overwhelmed with emotions and thoughts I
> just don't know which way is up.
>   I am hoping that maybe some of the findings aren't as bad as they say,
> etc.
>   I do have two questions:
>   1. Is it true that if a child is born with a trisomy that the drs won't do
> surgeries?
>   2. For the moms...did you feel your babies moving a lot or not much at
> all?
>   Thank you again for all your support
>   :) Samantha
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
> 


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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