[tri-med] Re: Osteopenia / Fractures

we had kam checked after the last chicago conference.  they did xrays and 
said her bones looked very thin.  she was diagnosed with osteoporosis (not 
pena but i cant remember he number) at age 6.  she has broken her left 
femur.  with a treatment of magnesium and calcium her bone density increased 
29% so then she reached osteopenia.
jude, mom to derek-19, kelsey-17
and kameron-8-full t18
golden, colorado usa
http://www.judewolpert.com
http://home.comcast.net/~jfwolpert2
http://judewolpert.com/v-web/b2/
----- Original Message ----- 
From: "Karen" <karens@xxxxxxxxxxxxxxxx>

> One of our Aussie mums (no internet access) who has a little girl with 
> T-18 (full) recently had an ultrasound which showed amongst other things 
> healing rib fractures and osteopenia.
> She was understandably upset thinking that she had caused the rib 
> fractures (or more likely her newest baby who was constantly falling on on 
> her daughter when he was learning to walk) and would be notified for child 
> abuse. I have reassured her that its "par for the course" although her 
> daughter is quite young for the fractures to be starting (she is 3).
>
> She is off to see the endocrinologist and I said that I would ask if 
> others would share their experiences - age of onset (or diagnosis), types 
> of fractures and treatments so that she could take them along with her. 
> This little one has few medical problems - a heart condition that is not 
> needing active treatment at this point, obstructive apneas being treated 
> with C-PAP - and thats about it for active medical issues. She is G-tube 
> fed, says "mum", is standing and starting to take a few steps in a walker, 
> and absolutely gorgeous of course :-)) (but then again I am a bisaed 
> defacto aunty)

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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