[tri-med] Re: Not posting/belonging


-----Original Message-----
>From: John and Ceci DeGenova <jcdegenova@xxxxxxxxxxxxx>
>Subject: [tri-med] Re: Not posting/belonging
>
>When we first found this list back in the spring of 1998 while we were
>pregnant with Anna, I couldn't believe my good fortune in finding others who
>had "been there, done that", or were going through what we were going
>through.  It was great to have a place to ask questions, but even more
>importantly, read about the children who survived, the ones who were making
>it despite the odds.  I have to honestly say that it never occurred to me to
>think that one child was "luckier" than the other because they were mosaic,
>or didn't seem to have the urgent medical concerns as another one.  I felt
>like we were all in this together, and it wasn't fair that any of our kids
>were inflicted with these concerns, no matter what they were.
>
>For those of you who feel guilty about posting achievements, let me tell you
>that it was those postings about your child's milestones, no matter how big
>or how small, that gave us hope.  They were a beacon of light for us during
>a very dark time when the medical community was telling us there was no
>hope, no light.  They taught us not to give up on Anna, that there WAS hope,
>even though the odds were against us.  Please don't stop posting these
>achievements and the next time you hesitate, please think of me and remember
>that you are not bragging...you are offering hope!
>
>Unfortunately, Anna stayed with us here on earth for far too short of a
>time.  And it's been 8 1/2 years since she died and I'm still here.  Since
>Anna gained her wings, I have been responding to posts less and less as time
>passes.  However, I read them all, laugh and cheer with the achievements and
>cry with the pain.  I, too, don't respond many times because I have no
>experience with it.  And, many times, like this post, I don't quite know how
>to put my thoughts into words without sounding like the village idiot!
>Sometimes, I just have to put my fears aside and type.

Ceci,
Wow, your post made me smile and tear up at the same time!


Chris
wife to Pat, mama to Dalton 15yo, Darby 12yo, McKensie 11yo, and Mari 5yo (full 
T18, dob 8/24/01 & The only one who always likes me....unless I'm trying to 
wipe her nose)
Tipp City, OH  USA
http://pg.photos.yahoo.com/ph/misstippcity/my_photos
http://home.earthlink.net/~loganfamily/id1.html
http://www.benotafraid.net/story.asp?id=38
http://web.coehs.siu.edu/Grants/TRIS/
www.trisomyonline.org
www.trisomy.org
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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