[tri-med] Nissen??

My 5 month old has a rare chromosome disorder - a partial trisomy of 17p.  She 
has been battling reflux and we just found out, and corrected, severe 
hydrocephalus.  The drs are eager to also quickly put her through the Nissen 
procedure along with a possible g-tube.  She actually was eating fine, just 
throwing up a lot, then refusing to eat much at all.  We did get the vomiting 
under control for a while and was using an ng tube to supplement, but the 
vomiting came back and was probably due to the hydrocephalus.  The drs really 
think she needs the Nissen SOON, but she just had the shunt surgery, and a 
scope this week.  That was under general anethesia twice in less than a week 
along with many other tests.  I feel like she needs a break before we make that 
determination!!!!
Anyway, if anyone has a child who had the Nissen, please give me the good, the 
bad and the ugly!  I hate to quickly put her through surgery only to find there 
are other, often worse, problems as a result!!!!  I want all information I can 
find before I make this decision.

Thanks,
Irene (Christina - 2, Caroline - 5 months, partial trisomy 17p)
http://www.babiesonline.com/babies/c/carolinerochelle
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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