[tri-med] Re: Night sweats - also

Also,
She eats orally, so continuous feed not an issue.
Looked up the nervous system stuff... too medical for me... I'll keep 
looking tho.  Thanks again.
Debbie, mom to Baby Claire (full T18 and one year old)
http://www.debbwebb.com/Claire/

___________________________________________
Her heart condition is 'mild'... only a 3mm VSD.
I can't say she doesn't have apnea, she does have O2 blowing by her as her
levels often dip.
Tell me more about the nervous system issues (or point me to a good website
if you have one, meanwhile I'll do a search)... I had no idea they would be
related... and never thought Claire would have that, but can't discount
it!  She hasn't shown signs of reflux... none that I can see.

Throwing another blanket on him?  How does that help?  Increase they body
temp?  She did run a fever on Sunday morning... it got up to 102 at about
3am.... and not sweating, probably the only time.  Why do you suppose she
sleeps so well when she sweats?  I know she sleeps really well when she is
warm, and not at all when she is cold (my other children were like that...
throw on another blanket and they go right to sleep).

Thanks again... any more ideas?

Debbie, mom to Baby Claire (full T18 and one year old)
http://www.debbwebb.com/Claire/

P.S.  I'm at an education institution... and virus free!

At 03:00 AM 3/30/2004 +1000, you wrote:
 >----- Original Message -----
 >From: "Debbie"
 > > Claire wakes up every night covered in sweat... often she is sweaty from
 > > naps too.
 >
 >It could be many things Debbie,
 >A few of the most obvious with our kids that come to mind are
 >1) a heart condition
 >2) apnea
 >3) autonomic nervous system issues
 >4) reflux
 >a little less common, but possible, is low blood sugars (how long since she
 >has eaten). If she is on continuous feeds it can be an indication that the
 >rate is on the high side for her body to cope with.
 >
 >Alex sweats profusely when he is asleep most nights - his is related to his
 >autonomic nervous system, more specifically its related to Shapiro's
 >syndrome.
 >
 >In Alex's case when he is like this, if I take his temperature its actually
 >lower than normal (meaning its not because he is hot), he is also usually
 >bradycardic (slow heart rate), hypotensive (low blood pressure) and he can
 >be having lowish sats from hypopnea (very shallow breathing).
 >
 >A lot of our kids seem to do this and its not a major issue - just be aware
 >that just because she is sweating it doesn't mean she is hot, feel her and
 >if necessary take her temperature. I actually add an extra blanket when Alex
 >starts sweating.
 >
 >Alex is extreme with his autonomic responses and it can (and often does)
 >become a major issue for him - but thats very unusual on the whole. So don't
 >think Claire will be the same.
 >
 >No answers but a few thoughts to play detective with....
 >
 >I have not lost my mind - it's backed up on disk somewhere.
 >-- Unknown
 >
 >Keep Looking For Rainbows!!
 >    _--_|\
 >  /Karen \
 >  \ _.--._ /
 >           v Karen, Mum to Alex (9 years, T-18 Mosaic)
 >http://members.optushome.com.au/karens
 >
 >
 >                   Building ___ooOOoo__ Rainbows
 >                        www.trisomyonline.org
 >                   Families Helping Families On-line

                   Building ___ooOOoo__ Rainbows
                        www.trisomyonline.org
                   Families Helping Families On-line 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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