[tri-med] Re: Nicholas - hernias

Hi Jayne :o)
Devon has had umbilical hernias since birth....still has them as a matter of
fact...at least that's what someone told me years ago when I asked what the
little soft knots were/are right above his belly button. He has had 2
inguenal hernias...one on each side of his lower abdomen...he now has
perfectly healed twin bikini cut scars that you can barely see. The first
one occurred when they brought his testicle down during the Free Petey
chapter...the surgeon says that inguenal hernias happen 90 % of the time
during this procedure and so they repair it as they go. The second one
happened the next year and half and it was about the size of a plum...never
bothered Devon...but bugged the heck out of me because everytime I pulled
his pants down this big "plum" stuck out on his lower abdomen...I could
massage it back in but it would pop right back out. We were told that it's
rare that these hernias strangulate but as far as we're concerned EVERYTHING
is rare about Devon so lets not tempt fate!!! Both of the inguenal hernias
that were repaired healed without incident. I have wondered too if perhaps
inguenal hernias are maybe a T13 thing...but it's hard to say with our
family because I know for certain that my dad had hernias...and also my mom
and my brother. Incidentally...I may have one now too???? Last week when I
was coughing spasmotically and couldn't stop...my back and my abdomen
strained so hard that one time when I didn't hold my tummy when I was
coughing...I swear I felt something tear in my abdomen not too far below my
belly button. There was no pain...but there was a definite tearing sensation
if that makes any sense????
Love,
Penny...devoted wife to Joe and "Mom" to Nick (12 yrs...lover of Harry
Potter, Yu-Gi-Oh, Fishing, Legos, Popcorn Chicken, Pizza, cheese sticks and
chocolate icecream w/ovaltine sprinkles) and "Mommy" to Devon (AKA-Stinky
Boy, The Chief or Devonrude...Lover of Bear, Elmo and the Muppets, Barney,
Blue, Pooh and Co. and food in general, 7 1/2 years old (6-15-95) !!! Full
Trisomy 13 w/balanced translocation 5 and 13)...Trooper...our newly adopted
child (our infinitely patient and loving 3 year old male yellow
lab...adopted into our family 12/13/02 :o)...KC (the feline child...Brat
gained her kitty wings 7-09-02 she was 16 years old +), Snitch and Lil' Dude
(Nick's turtles :o)
:o) DeLand, Florida
Meet our family at http://www.trisomyonline.org/victor.htm  (Compliments of
my dear friend Karen!
And last but not least, check out the homepage I made!
http://www.geocities.com/penvic4/Penny_sPage.html
The stone that was rejected by the builders, has become the cornerstone
(Psalm 118)

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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