[tri-med] Re: Nicholas Update 4/26

Hoping Nicholas improves more and more each day.

At 01:28 PM 27/04/2007, you wrote:
>oo
>
>
>
>   a.. Nicholas was taken off of mechanical ventilation around 3 PM 
> today and started to breath on his own. He is getting 40% oxygen at 
> 15 liters flow with moisture through a nasal cannula and is doing 
> well at present.
>
>   b.. Breathing treatments and/or medicine will be needed in the 
> next hours/days to help with the effects having the breathing tube 
> in for 4 days.
>
>   c.. Tonight they will start G-Tube feeds slowly (10 ml/hr) with TPN.
>
>   d.. Nicholas is off all pain medication at present.
>
>   e.. Nicholas is opening his eyes more and squeezes your finger 
> when placed in his hand.
>
>
>
>As we were writing this update at 7:15 pm Nicholas started to have 
>trouble breathing after being turned in bed.  He got excited and 
>anxious which led to stridor. (difficult breathing due to 
>inflammation of the muscles in the throat area)  It was a scary 
>event for us as his respirations went up and oxygen went down to 
>critical levels.   They stabilized him by giving him Decadron, 
>Adavan, Ephinephrine and starting Heliox at a 60/40 mix.  Nicks 
>blood gasses came back fine.
>
>He is stable right now (9 PM) but we are on edge.
>
>We were told that this isn't uncommon and in older children peak 
>swelling in the throat area can happen 4 or more hours after the 
>breathing tube is removed.
>
>Nicks attending physician in the ICU is Dr. Mitch Ross who received 
>his medical degree from the University Of Utah School Of 
>Medicine.  Dr. Ross knows Dr. Carey and I overheard him tell another 
>doctor that Dr. Carey is like a walking encyclopedia.
>
>Dr. Carey, please tell us that Dr. Ross got good grades in school?!
>
>Thanks for your continued thoughts and prayers.
>
>Mark and Jayne
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>
>
>
>
>--
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>25/04/2007 12:19 PM

Jocelyn, Wife to Frank, Mother to Ian, Gillian & Susan. Maker of 
quilts, singer of songs,
Nanna to Carly 19, Mathew 18, Ashleigh 17, Alex 15, and Tess 10 years 
old with T18.
also step Nanna to Carrie age 19. & Great Grandmother to Eli, Jonas & Escha.
Living in NSW, Australia 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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