[tri-med] Re: Nicholas

Hope you do get to come home for Christmas. Poor Nicholas, he sure 
has been in the wars! I will keep him in my thoughts and prayers.

At 01:33 PM 23/12/2006, you wrote:

>Nicholas has been in the hospital since Tuesday.  Last night they 
>did surgery at midnight to correct a broken femur (neck of the 
>femur).  The weight of the casts he had on contributed to the break 
>and the surgeon put in a plate (an adult shoulder plate) to keep the 
>bone together.  He has another hip spica cast and a cast down his 
>right leg.  They put an immobilizer on the left leg since that 
>fracture did heal.  We got the results from the DEXA scan and he has 
>severe osteoperosis (T score -6.5).  They are sending us to St. 
>Louis Children's Hospital to talk with a specialist about all 
>this.  They think there are several factors contributing to him 
>having 6 breaks in 3 months such as his syndrome, not weight bearing 
>as much as a person should, maybe not absorbing all the nutrients as 
>well as he should, seizure meds, etc.  There's a whole matrix of 
>things that might be contributing to his bone density and we need to 
>see someone at a bigger center that specializes in helping him t
>  o increase his bone density.  His surgeon says he sees this about 
> once every two years in children with special needs.
>We'll hopefully get to come home before Christmas.  Please pray that 
>we find some answers to this frustrating problem with Nicholas.
>
>Jayne - mom to Nicholas - T13 - 11 years old
>Hudson IL
>
>Walkin's easier when the road is flat
>Them danged ol' hills'll get you every time
>Yeah, the good Lord gave us mountains,
>So we could learn how to climb
>
>
>
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>
>
>
>
>
>--
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>Checked by AVG Free Edition.
>Version: 7.5.409 / Virus Database: 268.15.26/598 - Release Date: 22/12/2006

Jocelyn, Wife to Frank, Mother to Ian, Gillian & Susan
Nanna to Carly 19, Mathew 18, Ashleigh 16, Alex 14, and Tess 9 & 3/4 
years old with T18.
Living in NSW, Australia  


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Checked by AVG Free Edition.
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                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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