[tri-med] Re: Nicholas

we will be praying for you jayne gina son taylor. we have to bring taylor to 
the kidney doctor in jan and it does'nt look good gina
----- Original Message ----- 
From: "Mark & Jayne Wright" <jm.wright@xxxxxxxxxxx>
To: "tri-med" <tri-med@xxxxxxxxxxxxx>; "Ron Graves" <rgraves802@xxxxxxx>; 
"Paul Masters" <pmasters@xxxxxxxxxxxxxxxx>; "Olehy, Karen" 
<kjo@xxxxxxxxxxxxxxxxxx>; <msw95@xxxxxxx>; <Melissa_Marohn@xxxxxxxxxxxx>; 
"Maureen Barnosky" <nosleep2@xxxxxxxxxxx>; "Marcella Dumolyn" 
<martymarie@xxxxxxxxxxxxx>; "M Eshlemann" <meshlemann@xxxxxxxxxxxxxxx>; 
"Karen Breckley" <breckleygirls@xxxxxxxxx>; "Judie Laird" 
<jlaird4264@xxxxxxx>; "Jack Gannon" <jdgeeg@xxxxxxxxxxxxx>; "Gracia Zink" 
<zink5@xxxxxxxx>; "Duane May" <maydua14611@xxxxxxxxx>; "Dr. Steve Cantrell" 
<eyeski@xxxxxxxxxxxxx>; "DiAnn Kuehn" <kuehn@xxxxxxxxxxxxxxxxxx>; 
<barbsoft@xxxxxxxxxxxxxxxx>; "living" <livingwithtrisomy13@xxxxxxxxxxxxxxx>
Sent: Friday, December 22, 2006 8:33 PM
Subject: [tri-med] Nicholas



Nicholas has been in the hospital since Tuesday.  Last night they did 
surgery at midnight to correct a broken femur (neck of the femur).  The 
weight of the casts he had on contributed to the break and the surgeon put 
in a plate (an adult shoulder plate) to keep the bone together.  He has 
another hip spica cast and a cast down his right leg.  They put an 
immobilizer on the left leg since that fracture did heal.  We got the 
results from the DEXA scan and he has severe osteoperosis (T score -6.5). 
They are sending us to St. Louis Children's Hospital to talk with a 
specialist about all this.  They think there are several factors 
contributing to him having 6 breaks in 3 months such as his syndrome, not 
weight bearing as much as a person should, maybe not absorbing all the 
nutrients as well as he should, seizure meds, etc.  There's a whole matrix 
of things that might be contributing to his bone density and we need to see 
someone at a bigger center that specializes in helping him t
 o increase his bone density.  His surgeon says he sees this about once 
every two years in children with special needs.
We'll hopefully get to come home before Christmas.  Please pray that we find 
some answers to this frustrating problem with Nicholas.

Jayne - mom to Nicholas - T13 - 11 years old
Hudson IL

Walkin's easier when the road is flat
Them danged ol' hills'll get you every time
Yeah, the good Lord gave us mountains,
So we could learn how to climb




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