[tri-med] Re: Nicholas

oh so sorry jayne.  i wonder if dr carey might be able to help connect you 
to someone.
jude, mom to derek-21, kelsey-19
and kameron-10-full t18 (hanging out so i will never be an empty nester)
golden, colorado usa
http://www.judewolpert.com
http://home.comcast.net/~jfwolpert2
http://flickr.com/photos/judewolpert/

----- Original Message ----- 
From: "Mark & Jayne Wright" <jm.wright@xxxxxxxxxxx>

> Nicholas had an appointment last Monday with his urologist.  He has 
> another UTI (3rd one in 6 months) so she ordered a sonogram of his kidneys 
> and and x-ray of his bladder and we had that done on Thursday (he had 3 
> cysts on his kidneys for years and it never changed).  Well, she called on 
> Friday and told us that Nicholas has renal cystic dysplasia (multiple 
> cysts on his kidneys) and would only have months to a year before his 
> kidneys would start to shut down.  She said there is nothing you can do 
> about it other than a kidney transplant.  We are going to Riley Children's 
> Hospital for his endocrinologist visit in November and hopefully we can 
> also get in to see a nephrologist and get a second opinion.  I tried 
> looking for info about this on the internet but there's not much of an 
> explanation that I could find.  His urologist told me to go to 
> urologyhealth.org
> He's doing very well right now.  He's getting aqua therpy at Easter Seals 
> and is starting to crawl again.   I am so, so sad at this point.  I'm not 
> ready to let him go.

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