Jayne, I am so sad to hear this news. Nicholas has been through so much already. If you guys need anything we are close by. We'll be thinking of you and sending Nick big hugs. Kelly In a message dated 9/22/2007 1:56:33 PM Central Daylight Time, jm.wright@xxxxxxxxxxx writes: Nicholas had an appointment last Monday with his urologist. He has another UTI (3rd one in 6 months) so she ordered a sonogram of his kidneys and and x-ray of his bladder and we had that done on Thursday (he had 3 cysts on his kidneys for years and it never changed). Well, she called on Friday and told us that Nicholas has renal cystic dysplasia (multiple cysts on his kidneys) and would only have months to a year before his kidneys would start to shut down. She said there is nothing you can do about it other than a kidney transplant. We are going to Riley Children's Hospital for his endocrinologist visit in November and hopefully we can also get in to see a nephrologist and get a second opinion. I tried looking for info about this on the internet but there's not much of an explanation that I could find. His urologist told me to go to urologyhealth.org He's doing very well right now. He's getting aqua therpy at Easter Seals and is starting to crawl again. I am so, so sad at this point. I'm not ready to let him go. Jayne - mom to Nicholas - T13 - 12 years old Hudson IL Building ___ooOOoo__ Rainbows www.trisomyonline.org Families Helping Families On-line ************************************** See what's new at http://www.aol.com Building ___ooOOoo__ Rainbows www.trisomyonline.org Families Helping Families On-line