[tri-med] Re: Nicholas

Jayne, 

I am so sorry! I am praying for you and hope you will get better news at Riley. 

Erin and Charlotte


-----Original Message-----
From: Mark & Jayne Wright <jm.wright@xxxxxxxxxxx>
To: tri-med <tri-med@xxxxxxxxxxxxx>
Sent: Sat, 22 Sep 2007 12:54 pm
Subject: [tri-med] Nicholas




Nicholas had an appointment last Monday with his urologist.  He has another UTI 
(3rd one in 6 months) so she ordered a sonogram of his kidneys and and x-ray of 
his bladder and we had that done on Thursday (he had 3 cysts on his kidneys for 
years and it never changed).  Well, she called on Friday and told us that 
Nicholas has renal cystic dysplasia (multiple cysts on his kidneys) and would 
only have months to a year before his kidneys would start to shut down.  She 
said there is nothing you can do about it other than a kidney transplant.  We 
are going to Riley Children's Hospital for his endocrinologist visit in 
November 
and hopefully we can also get in to see a nephrologist and get a second 
opinion.  
I tried looking for info about this on the internet but there's not much of an 
explanation that I could find.  His urologist told me to go to urologyhealth.org
He's doing very well right now.  He's getting aqua therpy at Easter Seals and 
is 
starting to crawl again.   I am so, so sad at this point.  I'm not ready to let 
him go.

Jayne - mom to Nicholas - T13 - 12 years old
Hudson IL

      
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                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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