[tri-med] Re: Nicholas

Jayne,

I'm so sorry to read this, is there no possibility of a kidney 
transplant. My brother's grandson had a kidney transplant from his 
paternal grandfather, and although he has had some problems, is still 
doing well and his quality of life is much better.

At 04:54 AM 23/09/2007, you wrote:
>Nicholas had an appointment last Monday with his urologist.  He has 
>another UTI (3rd one in 6 months) so she ordered a sonogram of his 
>kidneys and and x-ray of his bladder and we had that done on 
>Thursday (he had 3 cysts on his kidneys for years and it never 
>changed).  Well, she called on Friday and told us that Nicholas has 
>renal cystic dysplasia (multiple cysts on his kidneys) and would 
>only have months to a year before his kidneys would start to shut 
>down.  She said there is nothing you can do about it other than a 
>kidney transplant.  We are going to Riley Children's Hospital for 
>his endocrinologist visit in November and hopefully we can also get 
>in to see a nephrologist and get a second opinion.  I tried looking 
>for info about this on the internet but there's not much of an 
>explanation that I could find.  His urologist told me to go to 
>urologyhealth.org
>He's doing very well right now.  He's getting aqua therpy at Easter 
>Seals and is starting to crawl again.   I am so, so sad at this 
>point.  I'm not ready to let him go.
>
>Jayne - mom to Nicholas - T13 - 12 years old
>Hudson IL
>
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
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>
>
>
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>20/09/2007 12:07 PM

Jocelyn, loving Nanna to Tess with Trisomy 18 aged 10 & 1/2 years

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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