[tri-med] Re: Nicholas

----- Original Message ----- 
From: "Mark & Jayne Wright" <jm.wright@xxxxxxxxxxx>
Well, she called on Friday and told us that Nicholas has renal cystic 
dysplasia (multiple cysts on his kidneys) and would only have months to a 
year before his kidneys would start to shut down.  She said there is nothing 
 >you can do about it other than a kidney transplant.

Jayne, sitting here I'm simply at a loss as to what to say........Imaging 
what a crushing blow it is to receive such news and what intense emotions 
you guys must be feeling right now......wanting to 'fix' the problem but not 
having alternatives that give one much hope.

Gonna admit, I started to cry.......


 >  I am so, so sad at this point.  I'm not ready to let him go.

{{{{{{Jayne}}}}}}

Michelle mom to Alex (20, partial trisomy 14 mosaic) and Molly (16)
MichiganUSA


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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