[tri-med] Re: Nicholas

I am so sorry.  Will he be able to be put on a transplant list?  I will be 
thinking of you.
 
 
Kim Ihlenfeldt, husband Kerry (complex balanced translocation 9, 15, and 18 
chromosomes), son Cameron 9 (same genetics as Dad), Cayden T-18 (12-16-02 to 
01-16-03), and Candace 2 (Partial Trisomy 18 and Partial Trisomy 15)
> Date: Sat, 22 Sep 2007 13:54:32 -0500> From: jm.wright@xxxxxxxxxxx> Subject: 
> [tri-med] Nicholas> To: tri-med@xxxxxxxxxxxxx> > Nicholas had an appointment 
> last Monday with his urologist. He has another UTI (3rd one in 6 months) so 
> she ordered a sonogram of his kidneys and and x-ray of his bladder and we had 
> that done on Thursday (he had 3 cysts on his kidneys for years and it never 
> changed). Well, she called on Friday and told us that Nicholas has renal 
> cystic dysplasia (multiple cysts on his kidneys) and would only have months 
> to a year before his kidneys would start to shut down. She said there is 
> nothing you can do about it other than a kidney transplant. We are going to 
> Riley Children's Hospital for his endocrinologist visit in November and 
> hopefully we can also get in to see a nephrologist and get a second opinion. 
> I tried looking for info about this on the internet but there's not much of 
> an explanation that I could find. His urologist told me to go to 
> urologyhealth.org> He's doing very well right now. He's getting aqua therpy 
> at Easter Seals and is starting to crawl again. I am so, so sad at this 
> point. I'm not ready to let him go.> > Jayne - mom to Nicholas - T13 - 12 
> years old> Hudson IL> > > Building ___ooOOoo__ Rainbows> 
> www.trisomyonline.org> Families Helping Families On-line> 
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