[tri-med] Re: Newly diagnosed Trisomy 18

In a message dated 5/25/2001 1:53:05 PM Central Daylight Time, 
rabell@xxxxxxxxxx writes:

<< We are told that the diaphragmatic hernia will need to be repaired soon
 after birth, but that there is no point if she has trisomy. Much of the
 reading I have done so far would seem to support this, with most suggesting
 only supportive treatment. >>

Hi Rory, my name is Michelle Wilson and my daughter is Faren Wilson.  She is 
almost 11months old and has T18.  She does not have the same problems as 
Caris.  Of course what you are hearing from your drs. and what you are 
reading is what most of the parents on this list have encountered.  Sounds 
like there's no hope for your baby doesn't it???  WEll, that's what drs are 
like.  tHey are wrong.  tHere is hope for these babies.  who are they to say 
if your daughter should be treated or not.  THere is a point for the surgery 
and that is that Caris should have every advantage that any other baby would. 
 I think that a lot of parents on this list can back me up on that.  Of 
course , the surgery should only be done if it is what is best.  Maybe you'll 
decide that it's not because of illness or some other problem....But don't 
let the drs fool you into thinking that our kids are not worthy of 
care....THEY ARE VERY MUCH WORTHY.......and many of our babies come out of 
surgery ok.  Although the statistics on Caris' life are not good as we all 
know about our own children.....find drs. that will take care of your baby 
the same as they would any other.....this is my advice to you.

Michelle Wilson, mother to Faren (11months with T18 and thriving!!) and wife 
to Rick
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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