[tri-med] Re: Newly Diagnosed Trisomy 18

I think its great that youre carrying Caris full term, Theres always a
chance :)
Good Luck Caris
Cheryl (wife to Jason, Mom to Matthew T12)
----- Original Message -----
From: <Jcdegenova@xxxxxxx>
To: <tri-med@xxxxxxxxxxxxx>
Sent: Saturday, May 26, 2001 9:21 PM
Subject: [tri-med] Re: Newly Diagnosed Trisomy 18


> Hello Rory!  I, too, am glad you found the list, just hate the reason you
are
> here!
>
> We had a prenatal diagnosis with my daughter Anna.  I really know nothing
> about diaphragmatic hernias, and so don't know the seriousness of it all.
As
> someone else already wrote, no one really knows what is in store for your
> precious Caris.  Is the surgery one that would be done after Caris was
born?
> We had relatively aggressive birth plans for Anna, wanting the docs to
give
> her every fighting chance to experience life outside my womb.  This was
based
> on the information we received from them on her medical condition, which
at
> the time, by the way, was excellent in utero.  We told them that after she
> was born, we would re-assess her medical condition and make further plans
> from there.  Just for your information, our perinatologist looked for a
long
> time for heart problems with ultrasounds, but never detected them.  When
Anna
> was born she had a VSD and ASD.
>
> Anna lived with us for nearly 3 months, with very few medical
complications.
> She died very suddenly one Sunday afternoon.  We were not faced with the
> question of surgery, and I'm not sure what we would have decided.  The
> important thing to keep in mind is that whatever you and your wife decide,
> given the information provided by your medical team, will be the right
> decision for Caris.  Already I can see the love you have for
her..........as
> my perinatologist wrote in a sympathy card after Anna's death, "Surely she
> knew more love in her short time than many have known in their entire
> lifetimes!!"  I think the same applies here.
>
> I don't know if I was much help.........just know that I remember what it
> felt like to have these grim outlooks for my baby and my heart goes out to
> you and your wife!!  Continue to ask questions here.........someone here
for
> sure has BTDT.!!
>
> Take care.
> Ceci, wife to John, mom to Maria - 18, Joe - 6 and Angel Anna, T-18.
9/22 -
> 12/13/98
> Frankenmuth, MI  USA
>
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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