[tri-med] Re: New to the group/Bard button valve leaking intermittently

----- Original Message ----- 
From: "J Pool" <poolja1997@xxxxxxxxx>
 My name is Jill.  Our youngest daughter Alegria Elizabeth (born
> 2/9/09) was just recently diagnosed with Trisomy 13.

Hi and welcome Jill!

We have no experience with feeding tubes/buttons here. Just spent a year+ of 
bottle feedings taking an hour for 1-2 ounces every 4 hours.
We came home (in 1987) with no info, no support and no Internet yet as it 
hadn't been invented.  ;-)

Michelle mom to Alex (22, partial trisomy 14 mosaic) and Molly (18)
MichiganUSA 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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