[tri-med] Re: New to the group/Bard button valve leaking intermittently

my son has the bard button. i had to change it after 3 months because he  
needed the next size up, then again 3 months after that because the little  
tip that closes the button wripped off and got stuck in the pathway where the 
 tube goes in, and then again it broke the same way maybe 4 months  after 
that one, and now since the last change its been 5 or so months. I really  
hope your lasts 18 months, but don't count on it !
 
 
i got the bard vs the mikey, because i do not have the stomach to change  
the mikey myself, and prefer to go to the surgeons office to have it done. 
Also,  the bard will never fall out, where as the mikey will. also the bard is 
flat and  not seen under clothes, whereas the mikey if a bit bulkier.
 
i also have leaking, if you leave the tube in for 15 minutes after flushing 
 the feed, you should not have too much leaking. i also take tape and tape 
an x  across the bard to keep it closed as i find it tends to open and that 
is when i  have the leaking.
 
as for flushing, it is a must after a feed. i use 20 ml water, before a  
feed it is good to do too, but i was told i did not have to.
 
Good Luck !
 
Sharon
 
 
 
 
 
 
In a message dated 6/11/2009 3:21:45 P.M. Eastern Daylight Time,  
tham.yin.may@xxxxxxxxx writes:

Hi there  Jill. We're facing the same problem exactly with Vera's Bard. It
seems it's  the downside of the Bard, it leaks after every feed doesn't it?
It's pretty  loose the cap.
What we do now is soak up with tissue and change it at 1min  after feed, 5
min after feed, and then 10 min after feed, by then it should  stop leaking.
The gauze ain't enough to soak up so much leaking milk and  might infect the
skin.

Vera has cleft palate and PDA at birth  too.

Welcome little Alegria. What a beautiful name.

Do share  what your doctor advises. We're getting some advice next week as
well,  share then.

May

On Fri, Jun 12, 2009 at 2:57 AM, J Pool  <poolja1997@xxxxxxxxx> wrote:

> Hello.  My name is  Jill.  Our youngest daughter Alegria Elizabeth (born
> 2/9/09) was  just recently diagnosed with Trisomy 13. She also was born 
with
> a  cleft lip/palate along with a small Patent Ductus Arteriosus,a small
>  Patent Foramen Ovale, and a bicuspid pulmonary valve.  She is being fed  
via
> a Bard Button right now.  She is doing very well right now  and has not 
had
> any apnea episodes in almost 8 weeks now.  We  have been very blessed and 
we
> continue to see God's guiding hand  through out this difficult process.
> One problem we are having is with  Alegria's Bard button valve which is
> leaking intermittently.  It  is only 3 weeks old, and one of the reasons 
we
> chose to go with this  one is because it is not supposed to need changed 
for
> 18 months.   I was told by the nurses at first that flushing it was 
really a
> matter  of preference, so I was not originally doing that, but I am now
>  flushing it with every feed.  Any suggestions would be greatly  
appreciated!
> I intend to call the doctor's office tomorrow, but he is  in surgery 
today.
>
> Thanks,
> Jill, mom to Alegria
>  -- <http://alegriaelizabeth.blogspot.com/>
>  http://www.livingwithtrisomy13.org/AlbumAlegria.htm
>
>
>   Building ___ooOOoo__  Rainbows
>                   www.trisomyonline.org
>         Families Helping Families  On-line
>
>


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