[tri-med] Re: New to the group/Bard button valve leaking intermittently

Hi Janet,
Could you email me a picture of your IV sponge? would like to see what one
looks like cos never heard of that here. thanks.

tham.yin.may@xxxxxxxxx
May

On Fri, Jun 12, 2009 at 9:14 AM, Janet King <jlvking@xxxxxxxxxxxxxxxxxxx>wrote:

> Wow. I just looked at Vera's page. Our doc only wants us to use one single
> IV sponge (which is much thinner than what you are using)under Hannah's
> Bard. Just goes to show how different advice can be! We don't have much
> leaking at all and Hannah is fed 24/7.
>
> -----Original Message-----
> From: tri-med-bounce@xxxxxxxxxxxxx [mailto:tri-med-bounce@xxxxxxxxxxxxx]
> On
> Behalf Of Yin May Tham
> Sent: Thursday, June 11, 2009 3:21 PM
> To: tri-med@xxxxxxxxxxxxx
> Subject: [tri-med] Re: New to the group/Bard button valve leaking
> intermittently
>
> Hi there Jill. We're facing the same problem exactly with Vera's Bard. It
> seems it's the downside of the Bard, it leaks after every feed doesn't it?
> It's pretty loose the cap.
> What we do now is soak up with tissue and change it at 1min after feed, 5
> min after feed, and then 10 min after feed, by then it should stop leaking.
> The gauze ain't enough to soak up so much leaking milk and might infect the
> skin.
>
> Vera has cleft palate and PDA at birth too.
>
> Welcome little Alegria. What a beautiful name.
>
> Do share what your doctor advises. We're getting some advice next week as
> well, share then.
>
> May
>
> On Fri, Jun 12, 2009 at 2:57 AM, J Pool <poolja1997@xxxxxxxxx> wrote:
>
> > Hello.  My name is Jill.  Our youngest daughter Alegria Elizabeth (born
> > 2/9/09) was just recently diagnosed with Trisomy 13. She also was born
> with
> > a cleft lip/palate along with a small Patent Ductus Arteriosus,a small
> > Patent Foramen Ovale, and a bicuspid pulmonary valve.  She is being fed
> via
> > a Bard Button right now.  She is doing very well right now and has not
> had
> > any apnea episodes in almost 8 weeks now.  We have been very blessed and
> we
> > continue to see God's guiding hand through out this difficult process.
> > One problem we are having is with Alegria's Bard button valve which is
> > leaking intermittently.  It is only 3 weeks old, and one of the reasons
> we
> > chose to go with this one is because it is not supposed to need changed
> for
> > 18 months.  I was told by the nurses at first that flushing it was really
> a
> > matter of preference, so I was not originally doing that, but I am now
> > flushing it with every feed.  Any suggestions would be greatly
> appreciated!
> > I intend to call the doctor's office tomorrow, but he is in surgery
> today.
> >
> > Thanks,
> > Jill, mom to Alegria
> > -- <http://alegriaelizabeth.blogspot.com/>
> > http://www.livingwithtrisomy13.org/AlbumAlegria.htm
> >
> >
> >                  Building ___ooOOoo__ Rainbows
> >                       www.trisomyonline.org
> >                  Families Helping Families On-line
> >
> >
>
>
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
>
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
>
>


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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