[tri-med] Re: New to the group/Bard button valve leaking intermittently

Wow. I just looked at Vera's page. Our doc only wants us to use one single
IV sponge (which is much thinner than what you are using)under Hannah's
Bard. Just goes to show how different advice can be! We don't have much
leaking at all and Hannah is fed 24/7.

-----Original Message-----
From: tri-med-bounce@xxxxxxxxxxxxx [mailto:tri-med-bounce@xxxxxxxxxxxxx] On
Behalf Of Yin May Tham
Sent: Thursday, June 11, 2009 3:21 PM
To: tri-med@xxxxxxxxxxxxx
Subject: [tri-med] Re: New to the group/Bard button valve leaking
intermittently

Hi there Jill. We're facing the same problem exactly with Vera's Bard. It
seems it's the downside of the Bard, it leaks after every feed doesn't it?
It's pretty loose the cap.
What we do now is soak up with tissue and change it at 1min after feed, 5
min after feed, and then 10 min after feed, by then it should stop leaking.
The gauze ain't enough to soak up so much leaking milk and might infect the
skin.

Vera has cleft palate and PDA at birth too.

Welcome little Alegria. What a beautiful name.

Do share what your doctor advises. We're getting some advice next week as
well, share then.

May

On Fri, Jun 12, 2009 at 2:57 AM, J Pool <poolja1997@xxxxxxxxx> wrote:

> Hello.  My name is Jill.  Our youngest daughter Alegria Elizabeth (born
> 2/9/09) was just recently diagnosed with Trisomy 13. She also was born
with
> a cleft lip/palate along with a small Patent Ductus Arteriosus,a small
> Patent Foramen Ovale, and a bicuspid pulmonary valve.  She is being fed
via
> a Bard Button right now.  She is doing very well right now and has not had
> any apnea episodes in almost 8 weeks now.  We have been very blessed and
we
> continue to see God's guiding hand through out this difficult process.
> One problem we are having is with Alegria's Bard button valve which is
> leaking intermittently.  It is only 3 weeks old, and one of the reasons we
> chose to go with this one is because it is not supposed to need changed
for
> 18 months.  I was told by the nurses at first that flushing it was really
a
> matter of preference, so I was not originally doing that, but I am now
> flushing it with every feed.  Any suggestions would be greatly
appreciated!
> I intend to call the doctor's office tomorrow, but he is in surgery today.
>
> Thanks,
> Jill, mom to Alegria
> -- <http://alegriaelizabeth.blogspot.com/>
> http://www.livingwithtrisomy13.org/AlbumAlegria.htm
>
>
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
>
>


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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