[tri-med] Re: New to the group/Bard button valve leaking intermittently

Would like to share my experiences with the Bard on Vera's blog
http://mylittlevera.blogspot.com/search/label/tube%20feeding

cheers,
May

On Fri, Jun 12, 2009 at 2:57 AM, J Pool <poolja1997@xxxxxxxxx> wrote:

> Hello.  My name is Jill.  Our youngest daughter Alegria Elizabeth (born
> 2/9/09) was just recently diagnosed with Trisomy 13. She also was born with
> a cleft lip/palate along with a small Patent Ductus Arteriosus,a small
> Patent Foramen Ovale, and a bicuspid pulmonary valve.  She is being fed via
> a Bard Button right now.  She is doing very well right now and has not had
> any apnea episodes in almost 8 weeks now.  We have been very blessed and we
> continue to see God's guiding hand through out this difficult process.
> One problem we are having is with Alegria's Bard button valve which is
> leaking intermittently.  It is only 3 weeks old, and one of the reasons we
> chose to go with this one is because it is not supposed to need changed for
> 18 months.  I was told by the nurses at first that flushing it was really a
> matter of preference, so I was not originally doing that, but I am now
> flushing it with every feed.  Any suggestions would be greatly appreciated!
> I intend to call the doctor's office tomorrow, but he is in surgery today.
>
> Thanks,
> Jill, mom to Alegria
> -- <http://alegriaelizabeth.blogspot.com/>
> http://www.livingwithtrisomy13.org/AlbumAlegria.htm
>
>
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
>
>


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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