[tri-med] Re: New to the group/Bard button valve leaking intermittently

It does mean the button is too long. But it can't be helped. When she lies
down, and her stomach is flat, it sticks out. But when she sits up and the
tummy fat pushes out, it sits well on the skin.
According to an experienced nurse at our hospital, the granulation is
supposed to subside for many in "a few months". It has subsided almost
completely for Vera after 3 months (yay!) So show them the beautiful button
on my blog (not Vera's but a friend's little girl) and say "see not all
buttons bleed!"

We used something called "Stomadhesive" The hospital nurse calls it 'magic
powder'. It works like antacid, just that it comes in a easy to apply bottle
and is very fine so you don't have to do manual grinding of the antacid
tablets. I found that for the antacid tabs if you don't pound them really
really fine enough, sometimes it can be abrasive on the stoma and cause it
to bleed when the gauze rubs against it.

What is a Benik? Is it a brace? Tell me more, cos Vera just got her first
spine Xray and her curvature is 18 degrees! I was so devastated to see such
an S curve and she's only 16 months...wonder what's in store up ahead if the
scoliosis worsens.

May


On Sun, Jun 21, 2009 at 1:20 PM, Annette Oseguera <tri18412@xxxxxxxxx>wrote:

> I looked at Vera's blog.  If there is room to put so much gauze under the
> button, does that mean that the button is too long?  Annette's button still
> has all the red bloody granulation tissue around the stoma and she's had her
> button since she was one month old!!!  We have seen GI surgeons and GI
> doctors and no one does anything.  They all say that all buttons bleed.  I
> started doubling up on the 2x2's when someone from the list told me to try
> it.  It has worked but occasionally she still gets the bloody stoma.  I
> think it might be from her Benik.  Unfortunately, she can't stop wearing her
> Benik because of the scoliosis.  I haven't tried the antacid powder.  I
> think I'll try that next.
> Annette
>
>
>
> --- On Thu, 6/11/09, Yin May Tham <tham.yin.may@xxxxxxxxx> wrote:
>
> From: Yin May Tham <tham.yin.may@xxxxxxxxx>
> Subject: [tri-med] Re: New to the group/Bard button valve leaking
>  intermittently
> To: tri-med@xxxxxxxxxxxxx
> Date: Thursday, June 11, 2009, 2:24 PM
>
> Would like to share my experiences with the Bard on Vera's blog
> http://mylittlevera.blogspot.com/search/label/tube%20feeding
>
> cheers,
> May
>
> On Fri, Jun 12, 2009 at 2:57 AM, J Pool <poolja1997@xxxxxxxxx> wrote:
>
>
>
>
>
>
>                   Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
>
>


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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