[tri-med] Re: New to the List

Evelyn and Connor!

Welcome to the list.

Can't help much with the T8, but hope you find what you need her.

Debbie, mom to Claire (T18)
http://debbwebb.com/Claire/



On 9/25/05, Evelyn Dichter <dichter@xxxxxxxx> wrote:
> Hi Everyone,
>
> My name is Evelyn Dichter, I am the mother of a 15 year old boy, Connor,
> with Trisomy 8 Mosaicsim.  He also has agenesis of the corpus callosum.
> I recently attended a conference this past summer for people who have
> ACC where he was a speaker on a panel.  It was a wonderful experience
> for him.  The conference offered many seminars on transitioning into
> adulthood and SSI / Medicare / Medicaid benefits.  Since then I have
> been getting together all of Connor's medical records and have made an
> appt. for his geneticist, whom we have not been to see in 8 years.  I've
> almost always focused on the ACC vs. the trisomy 8, but the other day I
> started googling trisomy 8 and was surprised to see there was much more
> info since the last time I googled it.  That is how I wound up on this
> list.  I'm interested to hear from anyone else out there with trisomy 8,
> and was hoping someone could explain the "mosaic" part of the diagnosis
> to me.
>
> Thank you,
> Evelyn Dichter, mom to Connor, 15, C-ACC & Mosaic Trisomy 8, and Erin,
> 17.  Wife to Jason, Medford NJ.
> -- Binary/unsupported file stripped by Ecartis --
> -- Type: application/ms-tnef
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>
>
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
>
>


--
Time flies when your having rum.
Sleep is for Pansies.

Faith sees the invisible, believes the incredible and receives the impossib=
le!
If you want the rainbow, you gotta put up with the rain.
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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