[tri-med] Re: New to list-please help

HI Lisa
  we are 22 weeks and also just found out,
  you know what we're doing?
  (yes even my husband admits to checking my email and reading these responses)
  I get up every day, take care of my family, then after the kids have gone to 
bed I sit in front of my computer ( i really hate these things)
  and CRY for hours as i read others stories and listen to questions and advice 
about the things that are happening to MY baby,
  then we CRY together
  then we get up and do it again the next day
  I am gratefull to all the people who contribute to this and many other sites 
that give me a place to come where i don't feel so alone
  Go ahead and cry, then cry some more,
   and when the tears subside i find I have just a little more hope and comfort 
than the last time
  God bless you and your family
  love jenn
  
lisa potash <lpotash@xxxxxxxxxxx> wrote:
  Hi- We just found out at 17 ½ weeks that our baby is positive after cvs and
amnio for trisomy 13 mosaic. We are at Northwestern which is supposed to be
the best around. The doctors there and genetic counselors/ob?s-pretty much
everyone we have talked to encourages termination. I haven?t found anything
on the web either that is helping to make our decision to proceed. We are
planning to wait the two weeks until the culture grows and have another
ultrasound but are told to expect confirmation only. Our 17 week ultrasound
showed nothing which they tell us means the bad cells are probably internal
which is worse. The mosaic part makes it even harder since they say it masks
the issues and sometimes prolongs them. As of today, I don?t feel it is
fair to try to have this baby born to just have it suffer and pass away so
quickly. I am also afraid what effect that will have on the rest of our
family. They tell us that mental retardation is almost a definite so it
doesn?t sound like the baby would even know it was here. The docs say I may
make it to term since it is mosaic. 
Any advice if you have a trisomy 13-mosaic? I am finding that it does matter
if it is 13 and if it is mosaic. Also, any other doctors/hosp that you
would recommend? I did get a second opinion from Evanston and it was the
same.

Thanks


Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line




                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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