[tri-med] Re: New to list-please help

----- Original Message ----- 
From: "Rebecca Leonard" <beccaleonard@xxxxxxxxxxx>
> does
> a severely developmentally delayed child know of and/or yearn for a 
> "better"
> life?

Our Alex is not severely developmentally delayed (affected by mosaic trisomy 
14) but he does have his issues/delays/problems.
He is TOTALLY aware of  most of his deficits much of the time and there are 
times that he does yearn to not have the problems he does.

Fortunately he is a very generous, kind, easy-going (like his daddy!) and 
practicle guy. He does not often wallow in self-pity and when he does it's 
generally brought on by outside forces making him face the areas of his life 
that he wishes were different.

 > -most importantly, i have not encountered a single person in our 
situation
> who regretted bringing their child to term.

I have.
Often  parents with feelings such as the above stated ones don't share that 
information freely or publicly for fear of then having to face the ire of 
those who don't understand or don't agree, etc.
Additionally, it's a very personal thing...those kinds of feelings.

There are siblings, grandparents etc who also will never accept a disabled 
child in their family. We have some in that situation on these lists.
And there are many, MANY reasons for their feelings being what they are.

Please note: I'm not saying or advocating that any of the above feelings 
and/or situations are 'right' but simply stating that they DO exist.

That is why each INDIVIDUAL needs to search their mind and heart to decide 
what is best for their family.

Michelle mom to Alex (19, partial trisomy 14 mosaic) and Molly (15)
MichiganUSA 


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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