[tri-med] Re: New to list...looking for options

That would be me!  Or, more accurately, Nicky.  Annette, there is also
an on-line support group similar to this list and a whole bunch of
stuff.  Don't have the URL but I know it's run through the University of
Maine.  I found it originally just by doing a search for corpus callosum
on Google.

ACC in and of itself is kind of a weird deal because the effects vary so
much from case to case.  People diagnosed with ACC usually have other
neurological anomalies so it's also tough to say if something is
"caused" by the ACC or if it's something else.  There's just not that
much research that gets done on ACC.  So there's not a lot of answers on
the ACC listserve, but there is plenty of support!  I bet you can find
someone on that list that has a similar dx to Annette neurologically.  

Stephanie Bloczynski aka Steph in Dallas
Mom to Nicky, Partial T-18, 21 months
bloczyns@xxxxxxxxx


-----Original Message-----
From: tri-med-bounce@xxxxxxxxxxxxx [mailto:tri-med-bounce@xxxxxxxxxxxxx]
On Behalf Of James Waite
Sent: Friday, August 30, 2002 7:48 AM
To: tri-med@xxxxxxxxxxxxx
Subject: [tri-med] Re: New to list...looking for options



----- Original Message -----
From: "Annette O." <MANSON666691@xxxxxxxxxxx>
> Have you read anything on the corpus callosum?  I have tried to find
info
on this but the only thing it says is that it transfers information.
Annette is missing this part >of her brain.

You need to talk with Karen because Aussie Alex has this. Someone else
on
the list does too (or used to be on the list???).

Michelle mom to Alex (15,partial trisomy 14 mosaic) and Molly (11)
MichiganUSA


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line



                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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