[tri-med] Re: New problem...fluid in chest cavity

Holly,

Thanks for the info.  I have never heard of this and haven't come across it 
yet in my research.

It is just so weird.  Caroline seems completely normal.  She is pretty much 
over her cold and she is acting like she is fine.  I can't believe this. 
You would never think there is something wrong.  I am hoping, since she is 
so asymptomatic, that we can have the specialist see her and evaluate the 
fluid without putting her in the hospital.  I am very doubtful though.  It 
seems that if you need to see a dr soon and you need testing completed, the 
only way to get it done without waiting months is by being admitted.

I will be calling the dr first thing tomorrow......hopefully there will be 
good news.

Thanks!
Irene
(Christina -3  1/2 y.o,  Caroline - 2 yo with partial trisomy 17p, Kallie 
Marie, born 6/23/05)
http://www.babiesonline.com/babies/c/carolinerochelle
----- Original Message ----- 
From: "McCormick Holly" <hmmmcormick@xxxxxxxxxxxxx>
To: <tri-med@xxxxxxxxxxxxx>
Sent: Sunday, July 31, 2005 6:33 PM
Subject: [tri-med] Re: New problem...fluid in chest cavity


> Irene,
> There have been discussions, from time to time, about chylothorax.  This 
> is=
> a hole in the thoracic duct.  Morgan was "lucky" enough to have this post 
> =
> operative complication when he was just a tiny baby.  He had thoracic 
> surge=
> ry to repair a t.e. fistula and esophageal atresia.  Usually a chylothorax 
> =
> is found to be a surgical complication, the surgeon accidentally nicks the 
> =
> duct.  The hole causes chyle, the fluid carried by the thoracic duct, to 
> ac=
> cumulate in the chest cavity.  When this happened with Morgan we had no 
> ide=
> a what was going on (he was still in the NICU, as he was only a couple of 
> w=
> ks. old.)  He started breathing heavily and having apnea episodes that the 
> =
> drs. just attributed to his trisomy.  He was sent to have an xray to see 
> ho=
> w his surgery was healing when they discovered the fluid accumulated in 
> his=
> chest.  The next thing they did was to draw some of the fluid out and 
> have=
> it analyzed to see what it was.  When it was determined to be chyle they 
> k=
> new the culprit was a chylothorax.  It does eventually heal, although it 
> ca=
> n take several weeks.  I don't know if this has anything to do with what 
> is=
> going on with Caroline, but it might be worth asking about it.
>
> "Another belief of mine; that everyone else my age is an adult, whereas I 
> a=
> m merely in disguise."
> Margaret Atwood
>
> Holly --  wife of Mike, mom of Morgan (7 yrs.), partial t18q & partial 
> mono=
> somy 9p (unbalanced translocation)
> mommy to Bonnie (border collie/spaniel mix) and Clyde (gray kitty)
>
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
>
> 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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