[tri-med] Re: New problem...fluid in chest cavity

----- Original Message ----- 
From: <irene67@xxxxxxxxxxxx>
>   Caroline had an appt with an ortho dr on Friday. He did an x-ray
> to look at her spine and hips and found something unrelated and
> disturbing. Her right chest cavity (not lung) has a lot of fluid and
> her lung is very small. He was shocked and said they often see this
> with a trauma case when the lung colapses.

That's not something I've heard before.

>I can't imagine how we are going to handle this. I
> have a newborn, I am breastfeeding, so I can't leave Kallie for any
> length of time (the hospital is 2 hrs from home).

Start pumping breast milk and freezing it (using the Playtex disposible bags
is clean and easy).
I worked part time after Molly was born. I went back at 3 months and Molly
was fed breast milk for 12 months, FULL TIME. When I wasn't working I
nursed her. The breast milk bottle was for my working days and the very rare
leaving of her otherwise.

If you get a supply of breast milk in the freezer you can leave her for a
day. If your pump doesn't travel well you can manually express milk for your
comfort while you are at the hospital. Some days that was easier for me than
using the manual pump (never had a battery or electric one, couldn't afford
them).

> I need to be
> with my sweetie as well. I also have obviously, as a stay at home
> mom, been much more in charge of Caroline's care and there are some
> things he may not be as knowledgable about.

It is that way isn't it?!?!  It's exposure and experience  that those who
are only with the kids for a few waking hours per day lack vs those who are
in it 24/7 do lack.
Although, a few times over the years a new set of eyes unjaded can pick up
something that I, being closer to the situation, may not even contemplate.
That's one of the reasons that Jim has never missed an 'important' appt or
consultation. We each pick up things the other doesn't and we are both
starting at the same point with knowledge.

Good luck and let us know what's happening!

Michelle mom to Alex (18, partial trisomy 14 mosaic) and Molly (14)
MichiganUSA


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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