[tri-med] Re: New, Looking for advice

In a message dated 6/22/02 2:04:19 AM Central Daylight Time, 
ecartis@xxxxxxxxxxxxx writes:


> My name is Leah and I live in Barrie, Ontario (Canada).  My youngest
> daughter, Erika, was born on April 10th, 2002 at 4lbs. 7 1/2 ozs. and
> has been diagnosed as T18.  She has been NG feeding since birth.  For
> the first 5 weeks, she was feed exclusively breast milk, however, I just
> could no longer get enough milk pumped and had to switch to formula. 
> She had been doing well, and is up to 7lbs.  However, this past week she
> has been having reflux at some of her feeds.

Hi Leah.  My name is Linda and my daughter Courtney has t18 and is tube fed.  
Courty had surgery at age 4 weeks for pyloric stenosis which solved part of 
our problem.  We started using a pump for feedings when Courty was about 18 
mos old, set at a slow speed.  She is now up to 75 cc's (about 2½ oz) per 
hour 22 hours per day.  We also changed her to ProSoBee (soy formula) when 
she was about 2½.  Courty had her n/g until she was 3 years old which 
contributed to a lot of sinus infections.  Has Erika's doctor mentioned 
gastrostomy?  If I had it to do all over again I would have made them do the 
surgery at least 2 years sooner and saved Courtney a whole lot of needless 
pain and suffering.  By the way, Courty is 9½ years old now.

Linda, Courty's mom

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