[tri-med] Re: New, Looking for Advice

kammie was og tubed lacto-free formula (i think it is by mead and johnson).
it worked pretty well for her.
are you using a pump or bolus tubing?  sometimes we had to go really slow.
jude, mom to derek-16, kelsey-14 and kameron-5-full t18
golden, colorado, usa
chromosome 18 registry & research society trisomy syndrome coordinator
http://chromosome18.org/stories_trisomy.htm#Wolpert
http://www.trisomyonline.org/wolpert.htm
----- Original Message -----
From: "Leah Stepanek" <leah@xxxxxxxxxxxxxxxxxxxx>
 She has been NG feeding since birth.  For
> the first 5 weeks, she was feed exclusively breast milk, however, I just
> could no longer get enough milk pumped and had to switch to formula.
> She had been doing well, and is up to 7lbs.  However, this past week she
> has been having reflux at some of her feeds.  I don't want her to start
> losing weight!  We are thinking about switching formula's but I'm not
> sure if that really has anything to do with the reflux, I realize that
> is often a problem with T18 children.  Any thoughts or suggestions on
> how to deal with this?
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
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