[tri-med] Re: New Family katy

Hi Gina,
Thanks for that. My son 27lbs on his last weigh about 4 months ago. He is 
getting tall and his feet are just starting to sprout. We thought he was doing 
so well this year with his chest infections as he had only had one and that 
didn't last very long, not like last year - he had a chest infection last year 
for 5 months. But this bug has hit him hard, his appetite is zero and I am 
getting to sip fluids every 15 minutes otherwise he wouldn't drink either. Its 
funny but my daughter who is now 4 months old had her first antibiotics last 
week because she had a chest infection and I wasn't really worried about her 
and she is now beaming with a runny nose. Why do i look at my son as being so 
fragile but my baby daughter can almost rear herself  -- I know the answer to 
that rhetorical question! I hate seeing him ill and I think he knows this even 
when I am smiling and trying to joke with him when he is ill he still looks at 
me and smiles and pats my hand as if
 to say 'don't worry mum, i'm ok'. If I had a magic wand or a single wish it 
would be for him to have good health, but I am sure many of you feel the same 
way.

Katy. sont8 mosaic.

----- Original Message ----
From: Gina Anderson <ghulce@xxxxxxxxxx>
To: tri-med@xxxxxxxxxxxxx
Sent: Wednesday, 26 March, 2008 1:42:05 PM
Subject: [tri-med] Re: New Family katy

hi  katy around that age taylor did slow down with not getting sick as much. 
right now he is at 58 lbs and is very tall , very big feet does your son 
have big flat feet , taylor is in a 5 right now . i know how you feel about 
the weight thing taylor did the same thing and right now if taylor does'nt 
eat we not he  is sick gina son taylor triosmy 8 mosaic
----- Original Message ----- 
From: "Katy Roberts" <basil1_2000@xxxxxxxxxxx>
To: <tri-med@xxxxxxxxxxxxx>
Sent: Wednesday, March 26, 2008 5:36 AM
Subject: [tri-med] Re: New Family



Hi, my son is t8 mosiac and nearly 4 years old. He was born 3 months prem 
and he had horrendous reflux. He was put on a drug to aid faster digestion, 
antacid medicine and fluid thickener. I kept him upright during all feeds 
and for about 1 hour after. he very rarely was laid flat and by the time it 
was safe  to lie him down it was time a feed again. Life for about 18 months 
was one long feed, the doctors did talk about a fundoplication and mickey 
because he did have a few bouts of pneumonia.
The good news behind all this info is that we got through it and he now eats 
well (food is still mushed up) and his favorite food is curry chicken korma. 
Although, he still gains weight very slowly and is still a little man, but i 
think this is a general trisomy thing.
My problem at the moment is that he hasn't been well for a few months with 
colds, chest infections and vomiting bugs and he has lost  what little 
weight he has and is now skin and bones (even more than usual). Its so 
upsetting to see him when he gets like this, he is so thin and pale and the 
doctors are thinking of taking him into hospital if he gets any worse. I 
have recently had a baby and she gains weight so easily and at 4 months will 
soon be overtaking my son in weight., its just not fair.
Besides full fat everything and duocal does anyone have any suggestions.

katy. son t8 mosaic.

----- Original Message ----
From: "SHAMOND73@xxxxxxx" <SHAMOND73@xxxxxxx>
To: tri-med@xxxxxxxxxxxxx
Sent: Wednesday, 26 March, 2008 12:47:46 AM
Subject: [tri-med] Re: New Family


hi and welcome, my name is sharon and i have a son Jason, 9 months old with
trisomy 17p . i have only given him formula, but my daughter, Lauren was
exclusively breast fed until she was 6 months old, she is a "typically
developing" child and had no GI issues. The only time she was fussy was when 
for  2 days
straight i was devouring chicken that i had made with a  consomme powder 
that
i did not know contained MSG.

When Jason was 2 months old, that is when his reflux started and when  he
started to really throw up because of it. Maybe the reflux is getting worse, 
or
the meds need to be adjusted.

Also, sometimes after they get their shots they are fussy for a few  days a 
few  days.

Good Luck !
Sharon




In a message dated 3/22/2008 12:32:51 P.M. Eastern Daylight Time,
melanie@xxxxxxxxxxxxxxxxxxxx writes:
Hello  All,
I am new to the list and will introduce myself more fully when I have  a
minute.

I am the mom to a 2 month old with Trisomy13.   She got her 2 month shots on
Wednesday.  For the past few days she has  been very gasey and fussy.  She
generally calms when you hold her, but  she is not her usual content self.
She is exclusively getting breast  milk through ng/bottle/breast.  It seems
that she frequently has gi  issues.  We are giving her mylecon drops every 4
hours and she is on  prilosec for reflux.  Can anyone tell me if they went
through something  similar.  Do you have any suggestions to help her gas? 
She did
throw up once last night and once today.  both times it was after my 
husband
fed her.  Could it be my diet?  Any suggestions on what I  should eliminate?

Thanks so much for any  advice.








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                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line








      __________________________________________________________
Sent from Yahoo! Mail.
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