[tri-med] Re: Need reassurance

Claire is T18 also.
We do use hospice a lot and found that they've given us a lot of
freedom when the hospitals gave up on us, but our situation has been a
bit different, yet in some ways, the same, as yours.

God bless you.  Litte Emma is in our thoughts and prayers.  May she
heal well and be able to spend much time with her family.

Debbie, mom to Claire, T18, 21 months
http://www.debbwebb.com/Claire/


On Tue, 21 Dec 2004 12:32:51 -0500, pam&darrell <bifman@xxxxxxxxxxxx> wrote:
> 
> --our son tyler was born with t13, heart defect, no eyes.  everything else
> was"normal"except that he
> needed a gtube.  we went through a lot of the same stuff you are talking
> about-doctors assuming your child won't live, etc.  i know in my heart that
> darrell and i gave tyler every chance at the best life he could have- he
> deserved no less.  i think you are doing the right thing if your heart tells
> you it is so.  no one else will ever understand your  child as well as you
> do, nor will they ever know what is right for you.  do what is best for
> emma.  it IS exhausting, gut wrenching and difficult on a slow day, but i
> will never be sorry for any of the choices we made as parents.  make sure
> you follow your heart.
> my prayers are with you and little emma
> 
> pam,husband darrell, mum to angel tyler t13 and kira 2.5
> elora ontario
> 
> >>
> >
> >
> 
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
> 
> 


-- 
If you want the rainbow, you gotta put up with the rain.
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: