[tri-med] Re: Need reassurance

--our son tyler was born with t13, heart defect, no eyes.  everything else 
was"normal"except that he
needed a gtube.  we went through a lot of the same stuff you are talking 
about-doctors assuming your child won't live, etc.  i know in my heart that 
darrell and i gave tyler every chance at the best life he could have- he 
deserved no less.  i think you are doing the right thing if your heart tells 
you it is so.  no one else will ever understand your  child as well as you 
do, nor will they ever know what is right for you.  do what is best for 
emma.  it IS exhausting, gut wrenching and difficult on a slow day, but i 
will never be sorry for any of the choices we made as parents.  make sure 
you follow your heart.
my prayers are with you and little emma

pam,husband darrell, mum to angel tyler t13 and kira 2.5
elora ontario

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