[tri-med] Re: Need help asap-heart surgury info for T18ers!!!

My daughter had heart surgery at 6 weeks we had it done at Duke Medical
Center in Durham NC she is 4 years old now check out my web site there =
is a
whole section on her heart surgery.  Usually the kids get to a point =
where
the drugs no longer can help and heart surgery is necessary.
Cindy

Live Well, Love Much, Laugh Often Cindy Mom To Cullen 4/7/99 ( my =
amazing
wild child) and Eleora 8/27/02 PT13 with partial deletion of 9 (Gods =
light
and ours)
http://www.livingwithtrisomy13.org/album28.htm
 http://groups.msn.com/Trisomy13Support/shoebox.msnw
www.toomeyfamily.net =20
-----Original Message-----
From: tri-med-bounce@xxxxxxxxxxxxx [mailto:tri-med-bounce@xxxxxxxxxxxxx] =
On
Behalf Of Michelle Wilson
Sent: Thursday, November 30, 2006 11:04 AM
To: tri-med list
Subject: [tri-med] Need help asap-heart surgury info for T18ers!!!

Ok, I know everyone is busy these days, but there is a
family nearby whose baby daughter started out doing
well even though she has a medium sized hole in her
heart.  The baby is progressing toward heart failure
and the family doesn't know what to do.  They don't
know whether to have the surgury or not and they also
don't know whether they will have a surgeon to do it.=20
Can anyone whose child has been through heart surgury,
particularly as babies, whether they passed during
surgury or lived on please send an email, it doesn't
have to be long, saying that they've been through
this?  Even those who decided to not have surgury,
could you write in to say why not and what the outcome
was??  Like I said I know everyone is busy, but I
think she wants to meet up soon and I would like to
have some info to give her that comes straight from
experienced families and not from books.  If anyone
wouldn't mind even sending their phone numbers to me
privately agreeing that this family could call or if
you agree to give the ok to give them your email
addresses that would be great too.  Thanks so much!!

Sometimes I think I'M the disabled one,
Michelle Wilson, mother to our BIG GIRL(ok, really the forever baby),
Faren(t18,  6 yrs old!!), the Barbarian aka "The Booper" and Quenby, aka
Quen Bee Bee. Oh, and wife to Rickeeeeee!

Patriotism is supporting your country all the time and your government =
when
it deserves it.   -Mark Twain

Oh, to have a lodge in some vast wilderness, where rumors of oppression =
and
deceit, of unsuccessful and successful wars may never reach me anymore.
-William Cowper, poet


=20
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