[tri-med] Re: Need Input on Clonidine

Hi Penny!
I'm afraid I don't have any advice on Clonidine (no experience at  
all), but I wanted to say how much we enjoyed meeting you, Donna and  
Devon at the conference. It was just great to be able to spend time  
with you in person--and especially to see Devon in all his  
vibrancy :) .  I can believe you when you talk about running  
interference for him a lot (e.g. making sure he didn't do a dive into  
the pond at the picnic!). He's a big boy (sizewise)!  I know you've  
told us that numerous times, but it wasn't till I saw him that I  
understood. I'll be praying that you find some solutions, and that  
you have peace about whatever decision you make. :)

Loren (wife to Kraig, mom to Keren Elyse, T18, 3 1/2 years old!  
(9/27/02), and Clarissa Joanne (7/17/05) )
Southeast Michigan
http://webpages.eng.wayne.edu/~ad6075


On Jul 27, 2006, at 7:44 PM, plugginalongpv wrote:

> Hi All :o)
> Sorry I've been remiss in reporting on our Chicago trip...still  
> recuperating really...will try this weekend :o)
> While at the medical clinics in Chicago our first Doc was the  
> Developmental Ped. As a person/doc I wasn't overly impressed with  
> the man...not a real personable guy and it seemed like he had kind  
> of a canned response??? But anyways...he DID give me one pearl of  
> wisdom...maybe...when he suggested we may want to try Clonidine for  
> Devon. He said it would regulate sleep patterns which is what he  
> takes Trazodone for...and it works. BUT he said the Clonidine can  
> also help with hyperactivity and/behavioural issues. THAT got my  
> attention. BUT as with all medications...they make us nervous. It  
> just so happened that I was telling Michelle (TRIS) about his  
> suggestion and she told me her daughter is on it and that it's done  
> good things for her with regard to behaviour. She DID say it could  
> knock him out for the first little while when he starts it but  
> should be able to get used to it without it changing his  
> personality...something we're not willing to part with :O)


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: