[tri-med] Re: Need Input on Clonidine

----- Original Message ----- 
From: <NanlorW
> Did I ever tell you about the time I put a whole patch on Dom's back UNDER
> the plastic girdle part of his Milwaukee brace. I figured because he sweat 
> so
> much it would be a good way to keep it from slipping off.

Yep - it helped to make me feel like I wasn't the complete turkey when it 
happened to Alex. His neuro agreed that with Alex the fact that he started 
sweating (because of a Shapiro's crisis) caused him to absorb the clonidine 
so much faster than was intended, plus Alex has always had the weirdest 
metabolism on the planet. The loss of consciousness and fighting for his 
life was a mix of the clonidine and the crisis. At the time though we werent 
sure how much each was contributing to his crash. These days we probably 
would have just given him more Clonidine but at the time we were too 
afraid........

If you want to cover the patches to stop them falling off use something that 
breathes like hyperfix. I use drug patches these days as part of my chemo 
and they are too expensive to replace if you lose the patch, so I make sure 
they stay on by putting hyperfix over the top. It breathes and allows the 
sweat to dissipate but at the same time I get maximum contact so maximum 
drug absorption as well.

Life consists not in holding good cards but in playing those you hold well.
                                            -- Josh Billings

Keep Looking For Rainbows!!
   _--_|\
 /Karen \
 \ _.--._ /
          v Karen, Mum to Alex (11 years, T-18 Mosaic)
http://members.optushome.com.au/karens

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
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