[tri-med] Re: NEED GT INFO - Sorry

i think the drs ALWAYS think our kids need to eat more than they should.  i
have decided to follow my gut with kam and go with how her general health
is.  they always look at a chart and tell me she needs more food.  kam is
VERY chunky and i think they need to look at the kiddo, not a chart.

kam does have a feeding tube and i love it and it is VERY (not at all scary)
easy.  however if i was you i'd tell the dev ped i wanted to work with a
nutrionist/feeding specialist/dietitician for 4-6 months before i decided if
the tube was the way to go.  you guys have a good feeding history so far,
dont give in easily unless mo is sick all the time.

i know riley has a feeding clinic.
my 2 cents.
jude, mom to derek-16, kelsey-14 and
kameron-5-full trisomy 18
golden, colorado usa
http://chromosome18.org/stories_trisomy.htm#Wolpert
http://www.trisomyonline.org/wolpert.htm
http://home.attbi.com/~jfwolpert2
----- Original Message -----
From: "April Young" <marssa@xxxxxxxxx>
>      Today we saw the dev.ped and she is not happy
> with her weight at all.  Also she only eats 25-30 oz
> and the dr said she must have 36oz each day no matter
> what.  So, she brought up the subject of a g-tube.  I
> have fought it all these years b/c she followed the
> growth curve.  Below it, but still had a good curve.
> She has lost that though and is sick again today and
> has only had 12oz. Each day is a battle and our focus
> each day is on feeding.  It can take an hour to get an
> 8oz bottle down her.


---
Outgoing mail is certified Virus Free.
Checked by AVG anti-virus system (http://www.grisoft.com).
Version: 6.0.427 / Virus Database: 240 - Release Date: 12/6/02

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: