[tri-med] Re: My first school question

We took a similar approach with Nick when we first started daycare.  He =
had
no major health issues and we were worried they would treat him =
differently
if they knew he had a genetic syndrome.  Actually, when we first =
started,
Nick was only 10 weeks old, so we didn't even have his diagnosis yet, we
were still going through testing. =20

We didn't include daycare in "the loop" until Nick was about 8 months =
old
and was ready to start getting therapy at school.  The teachers and =
director
already knew something was up because Nick was so far behind
developmentally.  After I had so many nightmares about disclosing his
condition, it was a total non-issue for the school. They could honestly =
not
care less and continued to treat Nick just like every other kid.  In =
fact,
they were relieved that WE knew something was different about Nicky, our
director was ready to approach us about having Nick evaluated.  :)=20

After another two months, Nick was not progressing with therapy and I =
quit
my job to stay home with him and work on the developmental stuff full =
time.
I was lucky enough to be able to do that for a year.  When it was time =
to go
back to work, I considered placing him at another daycare.  I was really
worried that he would not respond to a traditional daycare setting and =
would
need something smaller or more intense.  I called several in my area and
gave them my "special needs" spiel but never got comfortable with any of
their responses.  When I called up his old daycare, all I said was "Hi =
this
is Steph Bloczynski" and I swear, our director started yelling "Nicky's
coming back!"  It was like calling home on Christmas morning! =20

Our daycare is not the fanciest or most expensive but they truly excel =
at
making us feel special!=20

Steph in Dallas
Mom to Nicky, Partial T-18, 26 months



<<We our in a similar situation with Joumana's daycare. She is becoming
slightly delayed in her skills but when she started she was doing fine. =
I
have not told anyone about her trisomy situation. I have told them about
things that they really need to know about such as her eating issues and
health problems. We were afraid if we told them about the partial =
trisomy
they would treat her differently.>>=20


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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