[tri-med] Re: My first school question

We our in a similar situation with Joumana's daycare. She is becoming
slightly delayed in her skills but when she started she was doing fine. I
have not told anyone about her trisomy situation. I have told them about
things that they really need to know about such as her eating issues and
health problems. We were afraid if we told them about the partial trisomy
they would treat her differently. My husband is still in denial about the
entire issue and just wants to pretend it does not exist.  I'm still not
sure if this is the right decision as  she is starting to fall behind (She
is not walking or talking) and now I want her to get special attention. I
get paranoid that sometimes they know that she is not "normal" because she
is so small and has so many issues with eating and so many infections. I
feel guilty that I have not shared this information as I think it would
clear up a lot of their questions. But for now we are keeping it to
ourselves as we are afraid that she will be judged or may not be allowed to
live up to her full potential because of the preconceived notions about
children with genetic disorders.

I hope Hannah will enjoy her school. Juju loves going to daycare and
interacting with the other children. On days that she does not go she gets
very fussy as if she misses her friends.

Good luck!

Jenny in Houston
Mom to Joumana T18q 18 months
Wife to Firas

-----Original Message-----
From: tri-med-bounce@xxxxxxxxxxxxx
[mailto:tri-med-bounce@xxxxxxxxxxxxx]On Behalf Of Madjake00@xxxxxxx
Sent: Monday, February 24, 2003 8:00 AM
To: tri-med@xxxxxxxxxxxxx
Subject: [tri-med] My first school question


Hannah will be three in September and we are now entering the world of
school, and from the stories I hear from all of you, I had better get my
battle armor on.

I have enrolled Hannah in a preschool for two afternoons a week from 12:30 -
3:15.  I am excited for her to go because she is so social and loves to play
with other kids.  I think that the discipline might be a challenge for her
because she is so busy that she can't sit still for more than a minute, but
I
am hoping that school will help with that.

Now to my question....I had to fill out a little registration questionnaire
about her and one question was "is there anything we should know about her?"
And now to the "do I tell or not tell" dilemma.  She has no physical
problems
they would need to know about and so far seems to be developing age
appropriately.  She is talking (non-stop), she can count to 20, can say the
alphabet and can identify almost every letter of the alphabet.  I think that
is what most kids her age can do.

I opted not to write anything about the trisomy on her application, but do
you think I should our shouldn't tell the director?  I know that since we
live in the gray area of trisomy that it's going to be a question for her
entire life.  Up until now I have been so free in telling people about her
because she is such a miracle, but now it may become a hindrance.

How have others in this situation handled this?

Thanks for your help!


Kristin - wife to Bryan, mom to 2 year old Hannah - t13 mosaic w/
Robertsonian translocation, and Brennan Joseph - 9 months old, in Baltimore,
Maryland, USA
Come and see us at:  http://hannahclare.homestead.com/


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line



                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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