[tri-med] Re: Mosaic trisomy 18

Thank you all for welcoming me.
 
well Shami doesnt have a diagnosis for her spinal curve issue, She was in the 
hospital reently with pnuemonia and during the chest exray they noticed the 
curve and I am having a followup appointment with a paediatrician on thursday 
about the curve and will get a referal then. I am in Canada so referrals 
sometimes take a bit of time.
 
Nanci, your daughter is 15!! wow, well you are a source of advice indeed. 
what milestones Soleah reached?
--- On Mon, 2/9/09, Nanci Grimes <nancii@xxxxxxxxxx> wrote:

From: Nanci Grimes <nancii@xxxxxxxxxx>
Subject: [tri-med] Re: Mosaic trisomy 18
To: tri-med@xxxxxxxxxxxxx
Date: Monday, February 9, 2009, 3:41 PM

I'd love to talk to you more.  I have a 15 yr old daughter with tri 18
mosaic . . . her name is Soleah and hopefully we have 15 yrs of knowledge and
advice to share.
 
Nanci, Mom to Soleah
--- On Mon, 2/9/09, jwaite <jwaite@xxxxxxxxxxxxx> wrote:

From: jwaite <jwaite@xxxxxxxxxxxxx>
Subject: [tri-med] Re: Mosaic trisomy 18
To: tri-med@xxxxxxxxxxxxx
Date: Monday, February 9, 2009, 5:01 PM

----- Original Message ----- 
From: "tate guzuzu" <misstait2@xxxxxxxxx>
> i I have a 2 and a half year old with mosaic trisomy 18 and would like to 
> get in touch with other parents/caregivers who have children with the same

> condition maybe learn a few ways to help my baby more. She has some 
> devlopmental delay, she doesnt talk, walk and is just starting to sit on 
> her own, and recently just found out she has a curve in her spine too.

HI and welcome Tatenda! Sorry you had a reason to seek us out but glad 
you've found us.

What you describe in regard to Shami is similar to what many of our kids 
experience. I'm sure you'll be getting more info from folks as you ask 
specific questions or raise thoughts on what you've done and what 
works/doesn't work.

Has Shami been diagnosed with scoliosis?

While many 'flavors' of trisomy are represented here our kids are
unique 
individuals who have varied yet often similar issues.

Michelle mom to Alex (21, partial trisomy 14 mosaic) and Molly (18)
MichiganUSA 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line




      
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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