[tri-med] Re: Morgan's evaluation

----- Original Message ----- 
From: "Holly McCormick" <hmmmcormick@xxxxxxxxxxxxx>
  The dr. told us he didn't
> think Morgan was lazy or stubborn, he said that just like everyone else in
> the world Morgan cruises along in his daily life in a particular comfort
> zone.  That comfort zone includes things in the 6-9 mos. stage of
> development.

Makes so much sense when you think about it.

  There are some skills in
> the 6-9 month range that Morgan does not possess and so Mike and I have
> decided to concentrate on these for awhile.

Also makes sense.


> Another issue we discussed with him was age appropriateness.  Mike and I
> have recently been on an age appropriate "kick."  We thought that there
> were many times when Morgan could and maybe should be treated like a 6 yr.
> old.  This dr. didn't really agree (although he told me that if I
continued
> trying to convince him long enough he might be able to see my point of
> view.)  He said that by treating him like a 6 yr. old we would not be
> accepting him for who he is.  (He wasn't scolding us as he could tell that
> is not the way we are with Morgan.)  The more he talked about it the more
I
> could see his point of view.  He told us as long as we and others treat
> Morgan with respect it didn't matter what "age" he was.  I totally agree
> with that.


Wow.

The age appropriate issue is one that seems to be a recurring theme around
here. Sometimes it's hard for the head and heart to reconsile the size,
chronological age and developmental age differences in our children. Years
of preconceived notions about what's approriate and what isn't are ingrained
and it can be had to let them go.

It's really great that you and Mike are able to be on the same page and move
foreword as a unit.



> As time as gone by I have become less of an advocate for t18 awareness and
> more an advocate of awareness of all disabilities.

YOU GO GIRL!

Michelle mom to Alex (17, partial trisomy 14 mosaic) and Molly (13)
MichiganUSA


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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