[tri-med] Re: Morgan's evaluation

At 10:50 AM 29/06/2004 -0500, you wrote:
>The beginning of June Morgan had to have a review by a child psychologist
>to continue to be eligible for his waiver.  It went very well.

>Another issue we discussed with him was age appropriateness.  Mike and I
>have recently been on an age appropriate "kick."  We thought that there
>were many times when Morgan could and maybe should be treated like a 6 yr.
>old.

I agree that should happen with things like dressing appropriately. However 
the reality of the situation is that sometimes we have to do "necessary" 
dressing, such as bibs (or subsitute bibs if you find bibs unacceptable) 
for dribbling, especially in cold weather, to prevent chilling. It is a 
fact that most of our kids wear nappies (diapers) for their entire 
lifetime, and we wouldn't dream of sending them to school in ordinary 
underpants. I'm all for what makes for a clean comfortable situation, what 
ever that takes.

I was interested to read about Morgan's standing/walking accomplishments, 
bravo. I have not observed Tess in her walker recently, as it is with her 
Mummy, but Tess also used to resort to hanging in it. She did walk a few 
steps at first, but then it was just as if she said "Ive shown you I can do 
that, what's the point".


>As time as gone by I have become less of an advocate for t18 awareness and
>more an advocate of awareness of all disabilities.  It doesn't really
>matter what type of disability a person has, the public, health care
>persons, etc. should all be educated that everyone has the same rights
>regarding care and respect.  Oh boy, I'm not even going to get up on that
>soapbox today.



>Absolutely with you 100% on that last comment.
>
>"I'm growing older, but not up.  My metabolic rate is pleasantly stuck.
>Let those winds of time blow over my head.  I'd rather die while I'm living
>than live while I'm dead"
>Jimmy Buffet
>
>--- Holly, wife of Mike, mom of Morgan (6 yrs.) unbalanced translocation
>t18q+ and 9p-,  & IS, mommy to Bonnie (border collie, spaniel mix)
>     Des Moines, IA
>     http://www.geocities.com/hmmmcormick
>
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line

Jocelyn, wife to Frank, mother to Ian, Gillian & Susan.
Nanna to Carly 17, Mathew 15, Ashleigh 14, Alex 12, & Tess 7 years (T18)
Living in New South Wales, Australia


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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